1 post tagged “austatic savants”

Autism/ Austatic Savants
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I read the article by :
The whole Article ( below scroll down)
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From Times Online
November 28, 2007
Nick Hornby writes for The Times
Nick Hornby

may be i have got this problem, that is why i am non-communicative, unsocial may be ( you never know for certain

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http://www.timesonline.co.uk/tol/news/times_appeal/article2962661.ece?token=null&offset=0

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http://www.timesonline.co.uk/tol/news/times_appeal/article2962661.ece?token=null&offset=12

website of the school
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http://www.treehouse.org.uk/

i had / have the same problem, i am unsocial, non-communicative, but than i tried to study my self and reached this conclusion that some times " Rhizoplasty" is the problem that limts, children to become, austatic cases...... may be thats the case with most austatic children, but they are very hardworking, research oriented and loves internet, may be the whole familes and next generations, inherit ( Rhizo-plasty) condition, that limits them to remain in this health condition.

such children should regularly brush there teeths.
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Children who are too much educated, or children who born in very educated families, Education by inheritance, i think mostly suffer autism,

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previously in the past religious & Business Orgnizations ( for e.g Monks, temples, Maderssahs, HOPE, Red Cross etc) used to hire & accomodate such indivivuals ( esp in 3rd world / LDC's / South Asia), and kept them / supported them, but since the internet age has started, ( orgnizations ) have forgotten this duty, and they are not properly identifying such cases, such cases, were given Housechores/ Office Chore type Jobs, Alhamdulilah.

what laws exists for such an austatic savant/s who are medically ill/ plus disabled/ or have surgical problems, besides being a austatic person, esp in third world.

if such  cases are identified in LDC's/ 1st world, what the first worlds ( Business orgnizations are ) doing about this:
    - how such ( austatic) persons support themselves, whose famlies, / Neighborhoods, dont understand autism,
    - how to aware/ educate public in 3rd world about autism ( like the AIDS awareness/ social/ networking programs, are there any such)
    - Can the Law Systems give show cause notices to such parents
    - like the child labor laws/ cyber laws,/ MIA laws/ Intellecual laws/ Amnest etc...... are there any such laws for Autism ( Namely Austatic Law )
    - what future there is ....... for such cases in third world esp south East Asia ( India, Pakistan) where there are many such cases.
    - can Religous/Business orgnizations, look into this aspect

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The whole Article
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From Times Online
November 28, 2007
Nick Hornby writes for The Times
Nick Hornby

Nick Hornby

TreeHouse was founded ten long, long years ago.

One of our first homes was in a room in a public library in Swiss Cottage. "Autistic children in a library" should be a well-known phrase or saying, meaning something like "bull in a china shop", and the ludicrously inappropriate setting gives some idea of the desperation of the parents involved.

There were five children in the ‘school’ then, and the parents of these five children, my son Danny among them, were experiencing the trauma that all parents of a child with a severe disability will recognise.

Our kids were all young, which meant that they had been diagnosed only very recently, if at all, so we were all still grieving for the loss of the children we had all presumed we would be raising. When we did eventually get to talk to professionals about the kind of education that was on offer, we felt that our children deserved more.

Autistic children need specialist education, but at the last count there were just 7,500 specialist school places in the UK for ninety thousand children. These are lottery odds -- the TreeHouse parents decided to make their own luck.

The most common description of autism is that it is a communication disorder, but that doesn’t really even begin to explain it. A communication disorder sounds like something you have after a particularly gruelling afternoon at the dentist and your mouth is swollen. But a child with autism cannot communicate with you, and neither you nor anybody else can communicate with him, either verbally or in any other way. That means he, and it usually is a he, cannot learn how to talk or understand even the simplest things about the world.

In any case, that description ‘communication disorder’ cannot convey some, most, aspects of the condition that make the lives of parents and carers so difficult on a day-to-day basis.

It doesn’t convey the inexplicable and sometimes violent expressions of distress, the morale-sapping repetitive behaviour, the sleeplessness, the refusal to play games or leave the house or be in the same room as others - the refusal, it seemed to us sometimes, to do anything much at all.

Children with autism need to be taught in painfully small steps, and the method of education we wanted for our children recognised this. Because Danny has this condition, he couldn’t copy, and because he couldn’t copy, he couldn’t learn.

His education began with him learning to bang on a table in response to someone else banging on a table. This may not seem like much of an achievement, but for us, Danny’s parents, and for parents of any child who is severely autistic, this was a major milestone, a breakthrough more fundamental than learning to read and write.

Ten years ago, I couldn’t see TreeHouse lasting. The room in Swiss Cottage library seemed to me to be a stop-gap short-term solution to an intractable and depressing long-term problem, and I had no idea what we were going to do afterwards. I had, however, completely underestimated the determination and ambition of the other parents involved, and to my amazement, the ‘school’ became a real school, no speech marks necessary.

We employed amazing teachers, and then an indefatigable director of development. We moved out of the library and into a private house. When we got thrown out of the house, we moved into portable buildings on land owned by the Coram Foundation. As we started to accumulate children, the portable buildings got bigger. Eventually we bought our own plot of land, and set about raising the money to build a permanent school on it.
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This blithe account of progress that from here looks inexorable gives no indication of the levels of anxiety involved at almost every step of the way - the desperate search for funds, the battles for planning permission, the constant arguments with, and pleas, to local authorities unwilling to meet their legal obligations. I am not being modest when I say that I had the easy jobs - speaking occasionally at functions, writing the odd article like this one, giving away income from film rights, editing a fund-raising book. Fellow-parents, including Danny’s mother, were sitting on committees, writing policy documents, lobbying councillors, drawing up contracts, dealing with LEAs, hiring staff. I have never told them this, but I would have happily given away every penny I earned to avoid the hard work that they have put in. I got off very lightly indeed.

And now we have fifty-nine children, all of whom receive one-to-one tuition, and we’re well on the way to achieving our dream of a purpose-built school. And we have a determination to replicate the success of TreeHouse elsewhere in the UK. Eventually, we will be able to provide places for eighty children, but this, of course, is a drop in an increasingly turbulent ocean, which is why there is a national development team working within the school to offer training, consultancy and support. So far TreeHouse has been able to offer advice to fifteen schools around the UK.

Danny is fourteen now, and the school’s input into his life has been vital, crucial; without it, he may not have been able to carry on living at home, with parents and siblings whom he loves, and who love him. Sometimes, with autistic kids, you have to measure achievement in a different way: we like to think that all our kids have made amazing strides forward, but the not moving backwards can be every bit as important, because sometimes it feels as though autism is a whirlpool that wants to drag these children under and down into a world that nobody can reach. TreeHouse has stopped Danny from being dragged under.

This Christmas, he will sit down to various dinners with family members, and he will probably beam and whoop his way through them - he usually does. Ten years ago, though, he wouldn’t have been able to do this. We have a lot to thank the school for, but this is one of the tangible benefits - something that makes life simpler, more enjoyable, more normal.

TreeHouse runs some of the best and most innovative autism education services in England, and sometimes it seems absurd to me that this brilliant organisation is prevented from expanding to meet the huge demand for its services, because it cannot yet afford the appropriate premises. TreeHouse has achieved so much already without even being given the chance to exist properly yet. Can you imagine what it can achieve with the right resources? We are well on the way to achieving our goal of building the best specialist school for autistic children in Britain, but we’re still a sweat-inducing three million pounds short. I know we’ll get there in the end, but any help you feel you can give this Christmas would be more valuable than you can possibly imagine.

Nick Hornby is a founder parent of TreeHouse. He is the author of Fever Pitch and High Fidelity. His new novel, Slam, was published last month.
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